Laurence-Moon-Bardet-Biedl Society (LMBBS)

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Map for Laurence-Moon-Bardet-Biedl Society (LMBBS)

Organisation details

Description

The Group offers:
- advice and information for parents and sufferers
- benefit advice
- newsletters
- listening ear
- to put families in touch with each other
- annual family conference
- referrals to professionals
- a point of contact between families and professionals
- annual conference for for families and professionals.

Three leaflets available: one relevant for newly diagnosed patients, one aimed at teachers and one for the medical profession.

Services offered:

  • Support groups

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  • This organisation was verified on 29 July 2015