Alstrom Syndrome UK (ASUK)

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Map for Alstrom Syndrome UK (ASUK)

Organisation details

Description

Alstrom Syndrome is a very rare genetic condition which leads to progressive blindness and deafness and can also lead to heart and kidney failure, diabetes, liver dysfunction and associated problems.

Alstrom Syndrome UK (ASUK) provides information, support and advice for individuals affected the condition, their families and professionals. ASUK also promotes research and awareness of this very rare condition.

Services offered:

  • Support groups

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  • This organisation was verified on 19 January 2017