I Have IIH Foundation

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Organisation details


A patient support group and advocacy charity, based in the South Yorkshire, for patients who have IIH (Idiopathic Intracranial Hypertension). Through their website and its discussion forums, the charity offers information, advice, counselling and support from people with IIH and aims to help patients achieve a more positive and productive life with the condition.

The charity works in Partnership with the Brain and Spine Foundation, Rare Disease UK, Rare Disease Day USA, the Global Genes Project, and many others.

The I have IIH Foundation is a registered charity (number 1155833) in England and Wales.

Services offered:

  • Benefits advice
  • Grants and funding
  • Support groups
  • Emotional support

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  • This organisation was verified on 2 December 2015