Stickler Syndrome Support Group

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Map for Stickler Syndrome Support Group

Organisation details

Description

The Group provides information and support to families (and other carers) affected by Stickler Syndrome. We also provide information to professionals. Membership is a one-off fee of £20 for UK members.

Publications available:
- booklets on various aspects of the condition
- booklet for teachers
- booklet for medical and healthcare professionals
- 'Stickler, the Elusive Syndrome', the only book written on the condition

Services offered:

  • Support groups

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  • This organisation was verified on 30 June 2015