Birdshot Uveitis Society (BUS)

User rating: 5 stars

Map for Birdshot Uveitis Society (BUS)

Organisation details

Description

The Birdshot Uveitis Society (BUS) is a registered charity that offers support and practical advice, and aims to educate the general public and health professionals about this rare, hard to treat, autoimmune form of posterior uveitis.

Birdshot Uveitis is known by a number of names including Birdshot Chorioretinopathy, Birdshot Retinochoroidopathy, BCR, BRC, BSCR, BSRC.

The aims of the Birdshot Uveitis Society are to:
- support people diagnosed with Birdshot Uveitis and their friends and family members
- provide information for healthcare professionals and patients
- raise awareness of Birdshot Uveitis
- raise funds to enable us to expand our support network and information base and to undertake research, where appropriate.

Services offered:

  • Support groups

10 user reviews

  1. Barrie standish

    23 August 2016

    User rating: 5 stars

    Very informative site, fantastically run and an absolute godsend when you find out you have this disease. You know you're not alone in this anymore. Cannot recommend this highly enough.

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  2. Robert mc peake

    23 August 2016

    User rating: 5 stars

    This is a great support group. I would be lost without it. Have met some many great friends

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  3. Jo

    23 August 2016

    User rating: 5 stars

    This site gave me insight. I had no idea what I was about to head into. I was told what I had but was given no literature to inform me of what I could expect. Now I know that it's long term. Medication to deal with it is harsh on our systems. Not all meds work for everyone. Not one of us is exactly like another. It's a puzzle to be worked out in hope of recovery of our sight. Knowledge is power. Sometimes it's scary but there is hope. It's great to have up to date information. Thank you all for your effort to put this site in place. I can't thank you enough.

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  4. Adrian Taylor

    23 August 2016

    User rating: 5 stars

    I have been a member for many years and I am so impressed by BUS's dedication to getting things moving and changing for those with this condition. I think it is a model for anyone who wants to set up a support group and a charity for sufferers of a rare disease. I have met some great people who completely understand what is happening to you.

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  5. Margaret Gilmour

    23 August 2016

    User rating: 5 stars

    Without the help of the Birdshot Uveitis Society, I really don't know how I would have coped after my diagnosis. Having a potentially blinding condition is bad; having a rare one which can be hard to treat with medicines which have unpleasant side-effects, is worse. Good to be able to link up with others who have birdshot for mutual help and support!

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  6. Michelle Austin

    24 August 2016

    User rating: 5 stars

    I received very little information from my physician when I was diagnosed with birdshot chorioretinopathy and feel so fortunate to have found this group. The website has provided me with information about the disease, current treatments and allowed me to connect with others for emotional support. I no longer feel alone.

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  7. Mari Schlorff

    24 August 2016

    User rating: 5 stars

    I am very fortunate to have the support of this incredible group as I deal with this disease over the years. Thanks to the dedication of all involved in establishing the Birdshot Uveitis Society ( and special thanks to Annie Folkard), we have access to new evidence based research, current treatments, support, technologies in vision care.

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  8. Beverley Dew

    24 August 2016

    User rating: 5 stars

    When I was first diagnosed with Birdshot I was in a state of shock & fear & I had very little information on this rare eye disease. I really dont know what I would have done without the BUS community (particularly Annie Folkhard) at this time & since.

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  9. Sue Bridge

    26 August 2016

    User rating: 5 stars

    Brilliant organisation all thanks to Annie Folkard. Annie has worked so hard to get BUS to where it is.

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  10. Jackie pointing

    2 September 2016

    User rating: 5 stars

    Excellent website, this is a very unpredictable scary disease. This website is of great comfort & help.

    Report review 10 as inappropriate content

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  • This organisation was verified on 23 August 2016