Keratoconus GB

User rating: 5 stars

Map for Keratoconus GB

Organisation details

Description

Keratoconus GB was set up for the members to help each other share their experiences and stories regarding KC online. A support group for people living with all stages of the eye disease keratoconus, to share stories, help each other with advice, and have a chat with people that really understand what living with KC is like, on Facebook,Twitter, Instagram and Pinterest.

Services offered:

  • Support groups
  • Eye health advice

17 user reviews

  1. Victoria Cottam

    22 November 2012

    User rating: 5 stars

    this is an amazing group before i found it i felt like i was my own wirh this condition but now iv found people all over the contry that can hlp me and talk to me about any issues i have

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  2. danelle capon

    22 November 2012

    User rating: 5 stars

    Very useful site so glad i found it

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  3. Wendy Dickson

    22 November 2012

    User rating: 5 stars

    5* - I found them earlier this year and would be lost without it. I'm due my first transplant in under a week and the support is amazing.

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  4. Jon Lock

    22 November 2012

    User rating: 5 stars

    A new group - but already a wealth of information available here along with discussion and support. I only wish I had had access to this sort of resource when I was first diagnosed over 20 years back - things would have been so much easier!

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  5. Michael Sterckx

    22 November 2012

    User rating: 5 stars

    Great to connect with others who have the same problems and good to learn about developments as well.

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  6. Maria del Mar

    22 November 2012

    User rating: 5 stars

    I find Keratoconus GB page to be a very useful and helpful page for people with keratoconus

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  7. Kirsten Beitler

    22 November 2012

    User rating: 5 stars

    This facebook page and forum have been a godsend to me. Every day I appreciate being able to speak to others who understand KC and share info and advice. Much better and more open than USA based forums I have joined!

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  8. Abdulsalam

    22 November 2012

    User rating: 5 stars

    Informative content and friendly members :)

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  9. Penny Dean

    22 November 2012

    User rating: 5 stars

    Very good support and helpful advice.

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  10. richard bytheway

    22 November 2012

    User rating: 5 stars

    amazeballs :)

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  11. Emma Jones

    22 November 2012

    User rating: 5 stars

    Really friendly Facebook page, great to interact with others with kc. Also, very informative on the latest kc news and developments.

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  12. Sally Bryant

    25 November 2012

    User rating: 5 stars

    A really supportive group, where not only do we share experiences (good and bad) but we can also share tips and ask the questions we forgot to ask at consultations.

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  13. Demeter Polycarpou

    10 December 2012

    User rating: 5 stars

    I am very glad I found this group on Facebook... It comforting to know that there is a community of kind people that are willing to share their experiences first hand.

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  14. Wendy Dickson

    4 February 2014

    User rating: 5 stars

    This is my 2nd review of the group. I originally found the main FB page early 2012 & this was before I had my graft done the same year. The group has grown so much in this period. I'm now 14 months into my graft journey & can honestly say without the support of many people via the private FB forum & Twitter pages I'd be lost. I have now written a few blogs for the group page which if I'm honest never thought I would do because I'm not very good at that sort of thing but it has actually helped me getting it all written down & surprisingly people do respond to them. In my opinion this is the most informative group around with really inspiring people that will be friends for life.

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  15. Ian Goldby-Timmis

    4 February 2014

    User rating: 5 stars

    KCGB is a brilliant group of people. Without them I would not have decided to pursue a fix for my KC again as I had numerous failed attempts at correcting my vision. Everyone is extremely helpful and each and every member is treated with respect, regardless of their opinion on something. I honestly don't know what I would have done about my KC without them.

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  16. Donna

    4 February 2014

    User rating: 5 stars

    This group has given me so much information and it's good to know that your not alone.

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  17. Linda Greatorex

    4 February 2014

    User rating: 5 stars

    This is THE best support group not only for those who have Keratoconus but for their families too. It is friendly & welcoming & someone is readily available to respond to a question, lend a shoulder or offer fantastic advice. The information posted is always up-to -date & accurate. Can't recommend highly enough!

    Report review 17 as inappropriate content

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  • This organisation was verified on 10 November 2016