LHON Society

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Organisation details


We provide practical and emotional support to people affected by Leber's Hereditary Optic Neuropathy (LHON) and to those with an interest in LHON. We aim to share experiences and connect people while providing information on the condition and what support and technology exists to enable people with LHON to live fulfilling lives.

We strive to keep up-to-date on the latest medical developments into LHON.

Membership is available to those who live with LHON and their family and friends as well as professionals with an interest in the condition.

Services offered:

  • Support groups
  • Emotional support

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  • This organisation was verified on 14 February 2018