Wolfram Syndrome UK

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  • Address: 9 Church Way, Worthing, West Sussex, BN13 1HD
  • Tel:01903 211358
  • Email: admin@wolframsyndrome.co.uk
  • Web:www.wolframsyndrome.co.uk
  • Opening times:
    • Monday 9.30am - 5.00pm
    • Tuesday 9.30am - 5.00pm
    • Wednesday 9.30am - 5.00pm
    • Thursday 10.30am - 5.00pm
    • Friday 9.30am - 5.00pm
    • Saturday answer machine
    • Sunday answer machine

    Answer machine in operation 24 hours a day.

Map for Wolfram Syndrome UK

Organisation details


Charity and support group for individuals and families affected by Wolfram Syndrome.

We aim to fundraise to support research into the condition and to provide an annual conference for our members. We provide support where we can and aim to put those affected in touch with others in areas near to them to give friendship and support. New for 2016 - we can offer at discounted prices a static caravan on a Haven holiday park in Pagham, West Sussex. We will aim to provide financial assistance by way of grants for assistive technology and respite care. This is not yet available.

Services offered:

  • Short breaks
  • Support groups
  • Telephone befriending service
  • Emotional support
  • Befriending

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  • This organisation was verified on 7 January 2016