Batten Disease Family Association (BDFA)

  • Address: The Old Library , 4 Boundary Road, Farnborough, Hants, GU14 6SF
  • Tel:0800 046 9832
  • Web:www.bdfa-uk.org.uk

Map for Batten Disease Family Association (BDFA)

Organisation details

Description

The BDFA are a supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and promoting awareness of the disease and research into potential therapies.

The BDFA operates a free helpline for families living with Batten Disease and the professionals who support them.

Services offered:

  • Support groups

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  • This organisation was verified on 16 February 2017

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