Batten Disease Family Association (BDFA)
Map for Batten Disease Family Association (BDFA)
The BDFA are a supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and promoting awareness of the disease and research into potential therapies.
The BDFA operates a free helpline for families living with Batten Disease and the professionals who support them.
- Support groups