Alstrom Syndrome UK (ASUK)
- Address: 31 Shearwater Drive, Torquay, Devon, TQ2 7TL
- Tel:01709 210151
- Email: [email protected]
- Opening times:
Alstrom Syndrome is a very rare genetic condition which leads to progressive blindness and deafness and can also lead to heart and kidney failure, diabetes, liver dysfunction and associated problems.
Alstrom Syndrome UK (ASUK) provides information, support and advice for individuals affected the condition, their families and professionals. ASUK also promotes research and awareness of this very rare condition.
- Support groups
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This organisation was verified on 19 January 2017