I Have IIH Foundation

Map for I Have IIH Foundation

Organisation details

Description

A patient support group and advocacy charity, based in South Yorkshire, for people who have IIH (Idiopathic Intracranial Hypertension). Through their website and its discussion forums, the charity offers information, advice, counselling and support from people with IIH and aims to help people with the condition achieve a more positive and productive life.

The charity works in Partnership with the Brain and Spine Foundation, Rare Disease UK, Rare Disease Day USA, the Global Genes Project, and many others.

The I Have IIH Foundation is a registered charity (number 1155833) in England and Wales.

Services offered:

  • Benefits advice
  • Grants and funding
  • Support groups
  • Emotional support

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  • This organisation was verified on 28 February 2018